Karl attends launch of report highlighting the changes needed to ensure seriously ill children and young people in the UK receive the support they need

Karl McCartney MP has attended the launch of ‘WellChild’s Manifesto for Change’, a report which sets out the changes needed to improve the care given to thousands of children and young people with a serious illness or complex care needs and their families.

The Manifesto was put together by the national charity WellChild following a lengthy consultation with the families the charity supports and the professionals it works with. It presents a challenge to decision makers to ensure services improve for all families who are caring for children and young people with serious illnesses or complex care needs, whoever they are and wherever they live in the UK.

There are at least 100,000 children and young people in the UK living with serious illnesses or complex care needs. But sadly many of the families caring for these children and young people need more support than is often available. WellChild’s Manifesto for Change sets out the priorities that need to be addressed by the next Government, specifically:

  1. Better hospital care at the point of admission and diagnosis  (or in many cases re-admission);
  2. A far more planned, consistent  and integrated approach to ensure families are better supported in their journey home from hospital;
  3. And finally, better access to a flexible, tailored range of high quality care and practical support to enable families to be fully equipped to care for their child at home.

At the event Karl McCartney MP met with families caring for a child with complex care needs as well as a selection of WellChild Children’s Nurses who support them.

Karl McCartney MP said: It was a pleasure to meet with the WellChild nurses and families who care for children and young people with complex or long-term health conditions. We as politicians must do all we can to help WellChild ensure the best possible care and support for all these children and their families wherever they are and whenever they need it. It was especially poignant that Leanne Cooper, from Lincolnshire and not too far from my City of Lincoln Constituency, spoke with clarity and from the heart about her family’s and her daughter’s experiences with the health service and practical support that is available through Social Services.

Speaking at the event, Colin Dyer, WellChild’s Chief Executive said: “The issues we raise in our Manifesto – such as better access to training and information to give parents the confidence to care for their child at home; support to enable families to navigate the complicated health, education and social care maze – are issues that have been talked about by families time and time again. I hope that that the next Government will start to listen and will work together with the voluntary and healthcare sectors to finally crack these issues to ensure that more families are getting the support they need to enable them to care for their child or young person at home.”

 

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For further information, please contact Karl McCartney MP at karl.mccartney.mp@parliament.uk / 020 7219 7221.